International CAPS Registry: Pancreas Cancer Cases in Surveillance Programs
International CAPS Registry: Pancreas Cancer Cases in Surveillance Programs
Various centers around the world are currently investigating the feasibility and yield of
 surveillance for pancreatic cancer in high-risk individuals. Evidence is beginning to
 accumulate that surveillance may lead to the early detection of non-invasive precursor
 lesions and asymptomatic early stage cancer. Ultimately, the goal of surveillance is to
 reduce mortality in these high risk individuals, but before this can be confirmed many
 research questions need to be answered. While the numbers of high-risk individuals screened
 in each separate screening facility are likely too small to properly address many of these
 questions, pooling data comprises a sizable sample size providing unique research
 opportunities. The objective of this study is retrospectively review all cases of high-risk
 individuals participating in our pancreatic surveillance program in whom 1) a suspicious
 precursor lesions was detected for which a pancreatic resection was performed and 2) in whom
 an advanced malignant disease was diagnosed. The de-identified information will be entered
 into an international multicenter database registry.
The study is a retrospective review of all cases of high-risk individuals participating in
 our pancreatic surveillance program in whom 1) a suspicious precursor lesions was detected
 for which a pancreatic resection was performed and 2) in whom an advanced malignant disease
 was diagnosed. The de-identified information will be entered into an international
 multicenter database registry.
Inclusion Criteria:

 -  Elevated pancreas cancer risk cohort with pancreas cancer or dysplastic pancreas
 changes

 Exclusion Criteria: