Education Program in Myasthenia
Education Program in Myasthenia
Patient therapeutic education (PTE) has become "a must" in the modern management of chronic
 diseases. Its main objective is to improve compliance with treatment and the application of
 preventive measures. The main goal of this study is to assess the influence of the
 therapeutic education program on the perception of the disease in patients with autoimmune
 myasthenia. Secondary objectives are to assess quality of life, patient satisfaction of the
 PTE program, the acquisition of therapeutic goals and the influence of therapeutic education
 on the evolution of autoimmune myasthenia Study team hypothesize that therapeutic education
 could improve the patient's perception of myasthenia and its quality of life. By improving
 patient's adherence to treatments and his knowledge of the disease, it could also improve the
 evolution of myasthenia gravis. Study team suppose that PTE program can reduce the
 absenteeism at work, the number and duration of hospitalizations, particularly those in
 intensive care units.
Inclusion Criteria:

 -  Patient with generalized autoimmune myasthenia with Acetylcholine Receptor Antibodies
 (AChR Ab) or with antibodies to the muscle-specific receptor tyrosine kinase (MuSK Ab)

 -  Patient agreeing to participate in the therapeutic education program

 -  Signing consent

 -  Subject affiliated with a health insurance social protection regiment

 Exclusion Criteria:

 -  Patients without serological confirmation of myasthenia or pure ocular form

 -  Patient with cognitive impairment or behavioral problems that, in the investigator's
 opinion, will compromise their ability to comply with study procedures

 -  Refusal of the patient to participate in the study

 -  Patient who has already benefited from the therapeutic education program in myasthenia

 -  Age < 18 y.o.

 -  Subject under safeguarding justice

 -  Subject under guardianship or under curatorship