Parkinson's Disease Registry
Parkinson's Disease Registry
The purpose of the Parkinson's disease Registry (PDR) is to develop a nation-wide database of
 persons with Parkinson's disease (PD) in Taiwan.
Among degenerative neurological disease, PD is the second most common disorder. Although a
 wide range of incidence and prevalence rate exist in reviewed literatures due to a
 consequence of variation in study methodologies, the crude prevalence rate above 60 year-old
 is 1%. Increase in aging population will lead to an increase in PD patients. The PDR will be
 used to facilitate the understanding of basic epidemiological features of the disease,
 genetic and non-genetic risk factors, co-morbidity, the up-to-date treatment strategies and
 the related economic burden from medical and surgical treatment (deep brain stimulation), to
 develop new therapeutic protocols as well as healthcare policies, and ultimately, to improve
 the quality of life of PD patients. PDR will also be served as data bank for investigators in
 the field of PD to quickly identify and notify research subjects about other research studies
 for which they are eligible. Patient who registered can also sign their consent for a future
 brain donation after they passed away.

 Methods:

 The 4 main Tzu Chi Hospitals from Hualien, Da Lin, Taichung, and Taipei will serve as
 representative of pilot study for National registry. This will be a record-based,
 multi-center, nation-wide, cohort study. A user-friendly, yet, encrypted registration
 platform will be provided through internet for authorized personnel. The contents of PDR will
 be as follow: demographic features, risk factors, clinical profiles of diagnostic criteria,
 co-morbidity, images profiles, treatment regimens in details, prognosis, health-related
 quality of life, and neuropsychological assessment batteries.

 Expected results:

 1. To facilitate the understanding of demographic epidemiological features of PD.

 2. To find the risk factors of PD and the possible intervention toward disease prevention
 in Taiwan.

 3. To find the comorbidity of the disease, and the solution toward better treatment and
 related outcome.

 4. Assess current treatment approaches and develop best-practice guidelines.

 5. Tracking the health-related quality of life of PD patient as well as care-givers and the
 economic impact from different treatment regimens of best medications versus surgical
 interventions (neuromodulation / neuro-regeneration) from time to time.

 6. Drive the development of innovative research projects.

 7. Accelerate the process of informing patients of research projects for which they may be
 eligible.

 Key words: Parkinson's disease, Registry, Epidemiology, Treatment, Prognosis
Inclusion Criteria:

 -  Clinical diagnosis of Parkinson's disease

 Exclusion Criteria:

 -  None