Parkinson's Disease Registry of the Muhammad Ali Parkinson Center
Parkinson's Disease Registry of the Muhammad Ali Parkinson Center
The purpose of the Parkinson's disease Registry is to develop a national and international
 database of persons with Parkinson's disease (PD). The Registry will be used to facilitate
 the development of new therapies and healthcare services to improve the quality of life for
 people with PD. It will also be a means for investigators in the field of PD to quickly
 identify and notify subjects about other research studies for which they are eligible.

 Objectives include:

 -  Assess current treatment approaches and develop best-practice guidelines

 -  Track the functional abilities, access to healthcare and cost of illness of people with
 PD over time

 -  Drive the development of innovative research projects

 -  Accelerate the process of informing patients of research projects for which they may be
 eligible
What do you need to know?

 -  Any individual diagnosed with PD is eligible to enroll.

 -  Participation in the registry is voluntary, confidential and free of charge.

 -  Eligible participants will be notified about opportunities to participate in clinical
 trials, though they are under no obligation to enter.

 -  Participants will need to complete an updated questionnaire every six months.

 -  Participants may also be asked to complete additional surveys for PD research projects.

 -  Any data provided will be used in scientific publications in summary form only.

 -  Participant names will not be released to anyone outside the Parkinson's disease
 Registry management team without written authorization, nor will names be sold for
 advertising or fund-raising purposes.
Inclusion Criteria:

 -  Clinical diagnosis of Parkinson's disease

 Exclusion Criteria:

 -  No clinical diagnosis of Parkinson's disease