West Sweden Parkinson Objective Measurement Registry Study
West Sweden Parkinson Objective Measurement Registry Study
WestPORTS will recruit a randomly selected population consisting of 25% of all individuals
 with Parkinson's disease (ICD G209) that have visited any of the seven major outpatient
 neurology or geriatrics clinics in West Sweden (population 1.7M) during a predefined 12 month
 period between Sept 2016 and April 2018.

 Baseline clinical and demographic data will be collected along with a 6 x 24h accelerometry
 recording using the Parkinson Kinetigraph (Global Kinetics). Repeated data collections will
 be made with regular intervals of up to 2 years as long as subjects are alive and willing.
The following data will be collected at baseline:

 Date of birth Handedness Family history of Parkinson's disease Time of first motor symptom
 onset Laterality of symptom onset Time of diagnosis Time of first pharmacological
 intervention (if applicable) First antiparkinsonian drug

 The following data will be collected at every visit/update Current living conditions Current
 non motor complications Current medications Hoehn and Yahr staging Clinical Impression of
 Severity Index in Parkinson's disease (CISI-PD)

 Patient self assessments: PDQ8, NMS-Questionnaire, EQ5D-5L, Patient Reported Outcome in
 Parkinson's Disease (PRO-PD)

 Parkinson Kinetigraph (PKG) accelerometry based recording of spontaneous movement patterns
 over a 6x24h period. The following indices will be extracted: median bradykinesia score
 (BKS), median dyskinesia score (DKS), Fluctuation Dyskinesia Score (FDS), Percent daytime
 with Immobility (PTI%), Percent daytime with tremor (PTT%).

 The primary analysis will be descriptive and include demographic composition of the
 population, clinical characteristics and objective measurement data. In addition to indices a
 standardized qualitative assessment of PKG recordings will be made to identify motor
 fluctuations. Correlations between clinical ratings, patient reported outcomes, disease
 duration, age, medication and objective measurement indices will be studied

 In the prospective phase of the study the development of objective movement recordings will
 be studied along with the development of clinical ratings and patient reported outcomes.
Inclusion Criteria:

 -  Medical record with a G209 (Parkinson's disease) diagnosis

 -  A visit to one of the participating outpatient clinics in West Sweden within the last
 6 months

 -  Informed consent

 Exclusion Criteria:

 -  Diagnosis revised before visit.