Adaptation of the Questionnaire "Regarding Patient's Quality of Life With Mastocytosis" in the French Language
Adaptation of the Questionnaire "Regarding Patient's Quality of Life With Mastocytosis" in the French Language
Mastocytosis is a heterogeneous rare disease. A 27-item questionnaire to assess the quality
 of life of patients with cutaneous/ indolent systemic mastocytosis was developed in the
 German language and validated in the English language in 2015.

 The team of the University Charité Berlin and the company Moxie - intellectual proprietor of
 the questionnaire - proposed the use of the recommendations of Baiardini et al. 2010, for
 linguistic adaptation of this questionnaire in other languages.
The first two steps of the program of linguistic translation have already been carried out
 under the direction and supervision of teams from Charité University, Berlin and Moxie
 Company. The result of these two steps is a secondary version of the Mc-QoL questionnaire in
 French. The last step of this adaptation process in the target language (French, France)
 needs to be carried out and it is the subject of this study.

 The objective of this study is the French language adaptation of the Mc-QoL questionnaire in
 adult patients with indolent cutaneous and / or indolent systemic mastocytosis.

 During this study, the second version of the Mc-QoL questionnaire in French will be evaluated
 on 10 adult patients, with cutaneous and / or indolent systemic mastocytosis and native in
 the French language. The comprehension tests will be carried out by means of the structured
 interviews during which the investigator will ask if the patient has had difficulties to
 understand the recommendations, the questionnaires, will verify the interpretation of all the
 items and the understanding of each word by the patient. In case of problems, the
 investigator will propose and / or test translation alternatives, or will ask the patient to
 propose alternatives.

 Revisions to the second version of the Mc-QoL questionnaire in French will be done to rectify
 the problems identified in the conceptual equivalence. The result will be a third French
 version of the Mc-QoL questionnaire, which will be the final version.

 A report on the interviews will be written in English: it will describe the number of
 respondents, their age, the time required to complete the questionnaire, the difficulties
 encountered, the solutions suggested and retained and how the third version of the
 questionnaire was produced.
Inclusion Criteria:

 -  Adult, native French patient with cutaneous or indolent systemic mastocytosis and
 follow-up at CEREMAST, Toulouse

 -  Patient having given his agreement of non-opposition

 Exclusion Criteria:

 -  Minor patient

 -  Patient with other forms of mast cell pathology except cutaneous and / or indolent
 systemic mastocytosis

 -  Patient with no mast cell pathology

 -  French non-native patient

 -  Patient in detention or under guardianship

 -  Patient not affiliated with Social Security