Follow Ups of Parents With Infants With Cleft Lip and Palate
Follow Ups of Parents With Infants With Cleft Lip and Palate
In Norway, 100-120 children are born with CLP (1.9 per 1,000 live births) each year. Parents
 of infants with CLP need information and support, especially with feeding immediately after
 birth. These needs are often not met. The purpose of this study is to investigate the effect
 of systematic follow ups of parents with infants with CLP performed by a special trained
 nurse. Parental information needs, parental coping and stress and infant growth and feeding
 will be explored and compared to a control group receiving standard care. 26 parents (mothers
 and fathers) or more shall be included in each group according to specific criteria. The
 control should be examined first. Both groups will answer questionnaires 3 times during the
 child's first year.
Inclusion Criteria:

 -  Parents of infants with cleft lip and palate (CLP); cleft lip, cleft palate or cleft
 lip and palate

 -  Birthplace in south-east region of Norway

 -  Scandinavian speaking parents

 Exclusion Criteria:

 -  Parents of infants with CLP who are referred to the hospital after the first measure
 point

 -  Birthplace outside south-east region of Norway

 -  Non-scandinavian speaking parents