Multidisciplinary Health Educational Program Based on Centered People Care Model in Parkinson's Disease
Multidisciplinary Health Educational Program Based on Centered People Care Model in Parkinson's Disease
The objective of this study is to compare the effects of two similar long-term
 interprofessional programs, one of them delivers by in-person classes, and another delivers
 by online classes on the quality of life of people with Parkinson's.

 Method: People with PD will be randomized into 3 groups: (1) Face-to-face group, in which
 participants, in groups of 10 persons, followed a multidisciplinary health education program
 composed of 10 monthly face-to-face lectures; (2) Remote group, in which individuals followed
 the same lectures delivered by online; and (3) Control group, in which participants followed
 no lecture. The participants will be evaluated before (BED) and after (ABP) the education
 program conclusion (10 lectures). Health quality of life was adopted as a primary outcome.
 Independence in daily living activities, motor and non-motor symptoms severity, and global
 cognitive capacity was adopted as secondary measures, Besides, all participants will be asked
 to answer a survey to evaluate the knowledge improvement of key learning points of lectures.
 The results will be analyzed by ANOVA for repeated measures.
Parkinson's disease is a large cause of disability worldwide. The complex combination of
 motor and non-motor symptoms brings an increasing impairment in functionality and,
 consequently, a progressively decrease in the quality of life of the people living with PD
 and their families. The World Health Organization (WHO) recommends that for health care,
 especially in chronic diseases, care should be centered on the person (people-centered care).
 This model enlarges the focus on biological aspects, including psychological and social
 aspects, building a multidimensional perspective on an individual, which can only be reached
 by integrated and interprofessional care.

 According to this model, education is crucial to empower the person to occupy an active role
 in the health process, gaining greater control over decisions and actions affecting their
 health. Patient empowerment has been associated with positive health and clinical outcomes,
 including improved disease management, effective use of health services, improved health
 status, and medication adherence. However, there are several barriers for participants to
 attending this kind of program. Reasons for nonparticipation include mobility-reducing
 physical health issues, time constraints, distance, insufficient funds, lack of respite care
 if caring for someone else, and transportation. Thus, using a home-based video class may be
 one opportunity to reduce these known barriers and improve the accessibility of education
 programs. This delivery strategy can be beneficial for no high-income countries.

 Objective: The objective of this study is to compare the effects of two similar long-term
 interprofessional programs, one of them delivers by in-person classes, and another delivers
 by online classes on the quality of life of people with Parkinson's.

 Method: People with a confirmed diagnosis of Idiopathic Parkinson's disease, in stage 1-4 of
 disease evolution according to Hoehn and Yahr classification will be randomized into 3
 groups: (1) Face-to-face group (FFG), in which participants, in groups of 10 persons,
 followed a multidisciplinary health education program composed of 10 monthly face-to-face
 lectures; (2) Remote group (RG), in which individuals followed the same lectures delivered by
 online; and (3) Control group (CG), in which participants followed no lecture. People who
 have severe cognitive decline and uncorrected visual or hearing impairment will be excluded.
 Participants from both groups will be instructed to follow their usual routine for the
 treatment of the disease. The lectures on the management of motor and non-motor alterations
 associate with PD will be offered by a nurse, physiotherapist, occupational therapist, speech
 therapist, neurologist, lawyer, nutritionist, and psychologist. The participants will be
 evaluated before (BED) and after (ABP) the education program conclusion (10 lectures). Health
 quality of life, adopted as a primary outcome, will be evaluated by Parkinson´s disease
 questionnaire 39 (PDQ-39). The independence in daily living activities, motor and non-motor
 symptoms severity, and global cognitive capacity, adopted as secondary measures, will be
 evaluated by Unified Parkinson´s disease rating scale (UPDRS) and Montreal Cognitive
 Assessment (MoCA), respectively. Besides, all participants will be asked to answer a survey
 to evaluate the knowledge improvement of key learning points of lectures. The survey
 consisted of 20 questions (2 per lecture) where the minimum level (score 0) indicated the
 absence of knowledge and maximal level (score 5) indicated the full understanding of
 lectures' key points. The results will be analyzed by ANOVA for repeated measures considering
 as factor group (FFG, RG, CG) and assessment points (BED, AEP).
Inclusion Criteria:

 Clinical diagnosis of Idiopathic Parkinson's disease Must have acess to internet.

 Exclusion Criteria:

 Severe cognitive decline Severe visual impairment Severe hearing impairment