An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
Translational studies in cancer research can be impeded by the lack of high-quality clinical
 data that can be correlated with research questions. This is particularly true in the case of
 rare diseases, such as bone and soft tissue tumors. It is therefore the purpose of this study
 to create a prospective EHR-based clinical registry for individuals with bone and soft-tissue
 tumors.
Inclusion Criteria:

 -  Must have a diagnosis or presumed diagnosis of bone or soft tissue tumor as defined by
 the WHO classification of tumors of soft tissue and bone (4th ed.)

 -  Patient, or his/her designated power of attorney, must be able to understand and
 approve of the consent to participate.

 Exclusion Criteria:

 -  Prisoners are excluded from participation in the Registry.