Physical Activity and Fatigue in Myasthenia Gravis
Physical Activity and Fatigue in Myasthenia Gravis
Danish patients with myasthenia gravis are asked to answer a validated and international
 questionnaire about physical activity. Also background questions about their disease and
 comorbidity are asked. To validate the data about physical activity from the questionnaires
 69 patients are asked to wear an accelerometer for 7 days to measure activity level.
Secure digital mails are sent to around1500 patients qua their civil registration number (CPR
 number) (each resident of Denmark has a permanent unique civil registration number that is
 provided at birth or immigration to Denmark). The mail contains a link for the software
 REDCap (© 2018 Vanderbilt University), recommended by Rigshospitalet. REDcap is a secure web
 application for building and managing online surveys and databases. Patients are, in REDcap,
 informed about the project, and if interested, asked to sign the included informed content
 and answer six validated and translated questionnaires.
Inclusion Criteria:

 -  Danish resident.

 -  Alive.

 -  Minimum age 18 years.

 -  Registered in the Danish Patient Register with diagnosis code 70.0 (ICD-10) or 733.09
 (ICD 8).

 -  Subscribing E-boks (the Danish system for receiving secure digital emails).

 Exclusion Criteria:

 -  I fulfilling the inclusion criteria, then no exclusion criteria