Vulvar Scarring Grading Scale for Lichen Sclerosus
Vulvar Scarring Grading Scale for Lichen Sclerosus
The study aims to validate a vulvar scarring grading scale for lichen sclerosus (LS).
Utilizing the vulvar disorders registry, protocol #STU00001056, the research team seeks to
 analyze the medical record data, including standard of care vulvar photographs, of the vulvar
 LS population at Northwestern Memorial Hospital (NMH) and the outpatient clinics of
 Northwestern Medicine (NM). These photographs will be used to develop a vulvar scarring
 grading scale for LS. The objective measurement of scarring severity in LS deidentified
 standard-of-care patient photographs will be correlated with clinical examination findings to
 assess validity of the grading scale. The development of an objective and standardized
 grading scale will assist with the longitudinal evaluation of individual disease, assessment
 of impact of therapy on scarring, and inform treatment modifications. Further, objective
 grading of scarring would also provide the opportunity to search for potential correlation
 between QoL scores and severity of clinical states in scarring dermatoses.
Inclusion Criteria:

 -  Patients seen at Northwestern Medicine Department of Dermatology and/or Department of
 Obstetrics and Gynecology, who were seen by Dr. Bethanee Schlosser, and/or other
 members of the Vulvar Mucosal Specialty Clinic team in any of their respective clinic
 settings and underwent complete mucocutaneous examination.

 -  Patients with histologically confirmed vulvar LS.

 Exclusion Criteria:

 -  Patients who refuse complete mucocutaneous examination.

 -  Patients who refuse recommended diagnostic procedures.

 -  Pregnant women or prisoners.