Complementary & Alternative Medicine in Parkinson's Disease (CAM Care in PD)
Complementary & Alternative Medicine in Parkinson's Disease (CAM Care in PD)
We are trying to identify factors associated with improved quality of life and fewer PD
 symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals
 who report excellent quality of life, few PD symptoms, and reduced rates of progression.
 After agreeing to participate, we will ask participants to fill our questionnaires about
 their experience with PD, their health in general, along with their food intake every six
 months for five years.
This is a prospective, observational study designed to describe disease progression, symptom
 change, quality of life, diet and lifestyle habits among patients with Parkinson's disease
 (PD). This study will identify and describe those individuals with the highest quality of
 life and least amount of disease activity, in order to describe medication, diet, and
 lifestyle patterns associated with a lack of PD disease progression and high quality of life.

 Participants will be asked to complete online surveys every six months for five years. The
 time requirement is about an hour to an hour and a half every six months. Participants do not
 need to answer questions if they do not feel comfortable answering.

 At each six month time point we will send participants an email with the link to the CAM Care
 in PD survey, a questionnaire about health and wellbeing (completed in REDCap). After
 participants have completed this survey we will send participants a link to the second
 survey, about dietary intake (completed on ASA24.gov). Because there is a designated window
 of time during which surveys must be completed, participants may receive a gentle reminder
 from us if time is running out.

 This study is not designed to provide care. Participants are encouraged to consult with any
 providers you wish. Participants will not directly benefit from the study, but information
 gathered during the course of this study may help us begin to assess the longer-term effects
 of complementary and integrative care on health, disease progression and quality of life in
 PD patients.
Inclusion Criteria:

 -  Parkinson's disease (PD)

 -  Parkinsonism

 -  Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear
 Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)

 -  Must have online access, an email address, basic computer literacy

 -  Must be willing to complete online surveys every 6 months for 5 years

 Exclusion Criteria:

 -  Inability to read/write English

 -  Inability or unwillingness to complete surveys every six (6) months (~90 min)