SMYLS: A Self-management Program for Youth Living With Sickle Cell Disease
SMYLS: A Self-management Program for Youth Living With Sickle Cell Disease
The purpose of this study is to find out whether a web-based intervention using a mobile
 device is helpful for teens learning to care for and manage symptoms of sickle cell disease.
 The intervention lasts 12 weeks with a 3-month follow up period, and uses a smartphone or a
 tablet.
The purpose of the proposed study is to test the feasibility of SMYLS, an mHealth
 intervention designed to facilitate self-management behaviors in children and adolescents
 with sickle cell disease (SCD). Specifically, the investigators propose to test the
 feasibility of the intervention for improving transition from parent-managed to adolescent
 self-managed care. In addition, the investigators will evaluate the communication that takes
 place via the intervention between adolescents, their parents/caregivers, and healthcare
 providers. The investigators will work with the MUSC Pediatric Sickle Cell Clinic to identify
 and recruit 5 healthcare providers of children with SCD and 30 dyads of adolescents ages 11 -
 17 SCD and their parent/caregiver (n = 60).
Inclusion Criteria:

 -  diagnosis of SCD as reported by provider

 -  self-reported history of pain at least once per month

 -  caregiver/parent willingness to participate

 -  owns a smartphone

 Exclusion Criteria:

 -  not under the care of a provider participant

 -  cognitive disability or delay that precludes ability to participate, defined as
 classified severe neurocognitive deficits as documented by neuropsychological
 evaluation in the medical record

 -  lack of wi-fi access