Memory Disorders Registry
Memory Disorders Registry
The study is designed to collect data regarding the clinical course and outcome of patients
 suffering from memory disorders. Visits are charged to the individual's insurance inclusive
 of Medicare. Patients benefit from expert evaluation and treatment recommendations.
 Participants may be eligible for participation in experimental treatments in the future.
The purpose of this long-term, observational patient outcome registry at Cedars-Sinai Medical
 Center is to collect information about subjects with memory disorders from their clinical
 care and treatment outcome(s). It plans to examine predictors of treatment outcomes among
 those individuals who enroll.

 Currently, there are no curative treatments for memory disorders, and this study hopes to
 collect information on the disorders. Over the next 6 years, this registry expects to recruit
 600 adults over the age of 18 who are concerned that they may have a memory problem, or who
 have been diagnosed with a memory problem such as occurs in Age Associated Memory Impairment,
 Alzheimer's disease, Vascular Dementia, Mixed Dementia, Dementia with Lewy Bodies,
 Frontotemporal Dementia, Parkinson's disease, or Huntington's disease.

 The Memory Disorders Program owes its existence to patients agreeing to have their clinical
 information kept in a database for quality control and research purposes. This data will
 include physical and cognitive exams, laboratory tests and scans as well as information about
 their medications. Many potential subjects will call in with interest in our Memory Disorders
 Program, and a preliminary screening process will be performed over the phone. All potential
 subjects would be sent an informed consent document to look at before reviewing it with the
 study coordinator. Once they arrive at their initial visit, the research registry and its
 optional substudy (a postmortem exam available to all Cedars-Sinai patients) would be
 discussed with unlimited time for questions. If the subject, or his/ her surrogate decision
 maker (legally authorized representative, or LAR), consents to research, then his/ her
 clinical test results and (if applicable) the results of the postmortem exam will be kept on
 file for research purposes. If the subject/LAR consents, he/ she may also be contacted about
 any future research studies for which he/ she may be eligible. Patients who elect not to
 participate in this research will not be contacted for future studies. However, for those who
 are found to be ineligible and would like to learn about future studies as they arise, the
 Memory Disorders ICF offers them the option to be contacted in the future as new studies
 become available to them.

 This research study will involve no collaborations, inside or outside of the Cedars-Sinai
 Medical Center. However, the subject's clinical care will involve collaborations with other
 departments within Cedars-Sinai Medical Center.

 This registry will not involve any research-related costs, or any remunerative incentive.
Inclusion Criteria:

 -  18 years of age and older

 -  Capable of providing informed consent and having a legal representative able to
 consent out of concern for future competency to consent (as defined by a Mini Mental
 State Exam score of <24) or capable of assent but incapable of giving competent
 informed consent, but with a legal representative able to provide informed consent

 -  Subject or family voices concern about their memory or possess knowledge that they
 have been diagnosed with a memory disorder such as Age Associated memory Impairment,
 Alzheimer's disease, Parkinson disease, Huntington disease, vascular dementia, mixed
 dementia, dementia with Lewy Bodies, or frontotemporal dementia

 Exclusion Criteria:

 -  Children (less than 18 years of age)