Feasibility Testing of a Hospice Family Caregiver Intervention to Improve Patient Dyspnea Care
Feasibility Testing of a Hospice Family Caregiver Intervention to Improve Patient Dyspnea Care
This study is a pilot test of an intervention to train family caregivers of home hospice
 patients about recognizing and treating shortness of breath.
Shortness of breath is a prevalent symptom causing distress among patients at the end of
 life. In home hospice care family caregivers are expected to assist their family member with
 symptom management. This is often accomplished with little or no training.

 The investigators have developed a bundle of training materials targeted for family
 caregivers of home hospice patients at risk for shortness of breath. The investigators will
 pilot test the intervention in this clinical trial. A future randomized clinical trial is
 planned and the evidence from this pilot will enhance the planning of that future trial.
Inclusion Criteria:

 -  Patient in home hospice care with an estimated survival of 3-4 weeks, at risk for
 dyspnea secondary to lung cancer, COPD, or heart failure.

 -  Family caregiver in patient's home must speak and read English.

 Exclusion Criteria:

 -  Patients with bulbar ALS or quadriplegia.