University of Delaware Parkinson's Disease Registry
University of Delaware Parkinson's Disease Registry
The purpose of this Parkinson's Disease Registry is to assist with recruitment of willing
 participants into future Parkinson's disease research studies at the University of Delaware.
There is an urgent need for Parkinson's Disease research due to its increasing global
 prevalence. Participant recruitment is a significant challenge to the success of Parkinson's
 disease research and we need your help more than ever in moving the field forward and
 improving the lives of people who have Parkinson's disease. Recruitment of study participants
 can be facilitated by maintaining registries of people who agree to be contacted for future
 studies.

 The purpose of the University of Delaware Participant Recruitment Registry for Parkinson's
 Disease Research is to create a registry that includes the contact information and basic
 health information pertaining the participant's diagnosis of Parkinson's disease. The
 registry will streamline recruitment and enrollment in a variety of research studies focusing
 on topics such as, but not limited to: brain changes in Parkinson's disease, balance and gait
 in Parkinson's disease, exercise and its effect on motor function.

 To be in the registry individuals must have a clinical diagnosis of Parkinson's Disease, have
 an interest in participating in research studies, and be willing to allow the Parkinson's
 Disease Team access to their medical history from their medical provider(s).

 To become a member of this registry, primary information including contact information and
 some general medical information from a health provider are needed. Medical information will
 be evaluated to confirm Parkinson's disease diagnosis and to determine if a potential
 participant is eligible to become a member of the registry.
Inclusion Criteria:

 -  Individual 21 years old or older

 -  A clinical diagnosis of Parkinson's disease

 -  Interest in participating in one or more investigator-led research studies at the
 University of Delaware

 -  Willingness to allow the registry team to access to the medical history from the
 medical provider(s) that would confirm a clinical diagnosis of Parkinson's disease and
 provide basic health information that facilitate participant-study matching

 Exclusion Criteria:

 -  Individuals with a clinical diagnosis of parkinsonism that is not considered primary
 (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive
 supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.)

 -  Clinical diagnosis of dementia