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The Colored, Eco-Genetic Relationship Map (CEGRM)
Kenen and Preters designed the Colored Ecological and Genetic Relational Map (CEGRM), a pictoral map used to organize information about client relationships with biological and non-biological kin,
Kenen, R., & Peters, J. (2001). The colored, eco‐genetic relationship map (CEGRM): A conceptual approach and tool for genetic counseling research. Journal of Genetic Counseling, 10(4), 289-309.
Peters, J. A., Kenen, R., Giusti, R., Loud, J., Weissman, N., & Greene, M. H. (2004). Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. Am J Med Genet Part A, 130A, 258–264.
Peters, J. A., Hoskins, L., Prindiville, S., Kenen, R., & Greene, M. H. (2006). Evolution of the colored eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families. Journal of Genetic Counseling, 15(6), 477-489.
Instrument for assessing mass media reporting of disease-related genetic discoveries
Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related
Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
- Mountcastle-Shah, E., Tambor, E., Bernhardt, B. A., Geller, G., Karaliukas, R., Rodgers, J. E., & Holtzman, N. A. (2003). Assessing mass media reporting of disease-related genetic discoveries: Development of an instrument and initial findings. Science Communication, 24(4), 458-478.
CSER Phase 1: MedSeq Trials Published Study Protocol
This published study protocol for the MedSeq trials includes a description of the study design; recruitment, enrollment, and sample size plan; patient exclusion/inclusion criteria; and process of i
CSER Phase 1: The Institutional and Professional Impact of Genomic Sequencing in Cancer Care Study Protocol
This document is the study protocol of the Institutional and Professional Impact of Genomic Sequencing in Cancer Care study.
CSER Phase 1: The use of sequencing to guide the care of cancer patients (CanSeq) study protocol
This document is the Use of Sequencing to Guide the Care of Cancer Patients study protocol.
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study Protocol
The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients wit
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence analy
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor.
Shickh, S., Rafferty, S. A., Clausen, M., Kodida, R., Mighton, C., Panchal, S., & Bombard, Y., Lorentz, J., Ward, T., Watkins, N., Elser, C., Eisen, A., Carroll, J. C., Glogowski, E., Schrader, K. A., Lerner-Ellis, J., Kim, R. H., Chitayat, D., Shuman, C., Bombard, Y., and Incidental Genomics Study Team (2021). The role of digital tools in the delivery of genomic medicine: Enhancing patient-centered care. Genetics in Medicine, 23(6), 1-9.
Optional Results Choice Aid (ORCA)
The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, ad
Freed, A. S., Gruß, I., McMullen, C. K., Leo, M. C., Kauffman, T. L., Porter, K. M., Muessig, K. R., Eubanks, D., Goddard, K. A. B., Wilfond, B. S., & Liles, E. G. (2021). A decision aid for additional findings in genomic sequencing: Development and pilot testing. Patient Education and Counseling, 104(5), 960-968.
Plain Text Script, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in
Kelley, M., James, C., Alessi Kraft, S., Korngiebel, D., Wijangco, I., Rosenthal, E., Joffe, S., Cho, M. K., Wilfond, B., Lee, S. S. (2015). Patient perspectives on the learning health system: The importance of trust and shared decision making. Am J Bioeth, 15(9), 4-17.