Structured around the timeline of the patient s healthcare journey, this book explores the care of the patient from the point of presentation and diagnosis (whether that is antenatally, in the neonatal period or later) until there is a transition in the patient s healthcare journey either onto adult services, or in some cases, end of life. It considers all aspects of care that the child/young person may receive, supported in an evidence based manner, with chapters written by experts from a variety of professional groups involved with this patient group.
Chapter 1 An overview of new ways of working for the 21st century.
New ways of learning.
Usability and accessibility.
Changes in service and organisational effectiveness.
Interprofessional learning and collaborative practice.
Learning points from other higher education institutions.
Changes in health care.
Congenital Cardiac Services Workshop June 2006.
Chapter 2 Presentation and diagnosis.
Fetal diagnosis of congenital heart disease.
Cardiac arrhythmias and sudden death.
Chapter 3 Treatment options/management.
Admission and preoperative preparation.
Medical/interventional treatment options.
Introduction to paediatric cardiac surgery.
Chapter 4 Impact of heart disease on young people and their families: an introduction.
How are outcomes measured?
Quality of life measurement issues.
The infant and toddler with congenital heart disease.
The adult with CHD long–term physical and social issues.
The impact on the family.
Diversity and culture.
Chapter 5 What are communication skills ?
The changing climate.
The explanatory or exploratory communication style.
An organisational research project.
The templates and the competency in interactive communication.
Ethical or communication issues?
Chapter 6 Transition to Adult Services .
Psychological aspects of transition.
Chapter 7 The information jigsaw.
The beginning of the journey.
The hospital experience.
The next steps.