Many children with albinism in Uganda are not sent to school by their parents because they’re afraid they will be bullied and ridiculed, and might not be safe on the way there or back. Children with albinism who do get to school often have a difficult time and struggle with negative attitudes from their teachers and fellow pupils.
When I was at school, many children used to run away from me and they feared me a lot. They wouldn’t eat with me, they would just throw me food or eat and leave for me the remains.
John, a young man with albinism.
Advantage Africa and SNUPA train teachers, pupils and parents in the Busoga sub-region to understand what causes albinism and that all children affected by the condition have an equal right to learn, play and reach their potential. The training helps dispel myths and misconceptions and provides advice to ensure children with albinism are accepted, welcomed and thrive in school. Given their varying levels of visual impairment, this includes making sure they are allowed to sit close to the blackboard and away from bright light so they are better able to read and write.
Advantage Africa is supporting some children with albinism to receive eye assessments and spectacles to ensure they can progress well with their studies.
We also work with teaching staff to ensure that children with albinism are allowed to wear wide-brimmed hats and long sleeved uniforms to keep them safe from the sun while in the playground.
Move inclusive schools and better understanding of albinism is having a significant impact on the attitudes of wider communities in the region. Children with albinism feel safer walking to and from school, are making friends and doing well in their studies.
If children with disabilities or albinism do not have the chance to learn with their peers, this reinforces stigma and false beliefs. Sitting alongside other children and showing that we too can learn and contribute, is the best way to change attitudes. Disability is not inability: when we are given the opportunity, we can achieve anything.
The SNUPA team.