Understanding a Down Syndrome Diagnosis
This free web app educates new and expectant parents and medical providers about Down syndrome, which is a condition that usually occurs when a person is born with an extra copy of the 21st chromosome. It provides an overview of Down syndrome, explaining that it is diagnosed through prenatal testing, and discusses how expectant parents can work with obstetric medical providers and medical genetics professionals to understand the diagnosis and make pregnancy management decisions. It identifies medical issues that children with Down syndrome may encounter in their first year, including congenital heart defects, and discusses the potential impact a child with Down syndrome may have on their families.
The resource provides information on government aid, savings options, development and healthcare services, educational services, national Down syndrome organizations, international services, pregnancy loss, and adoption. Links to reliable, trustworthy web resources are also provided.
The content in this app is copyrighted by the Joseph P. Kennedy, Jr. Foundation. The text and images cannot be downloaded or printed for use elsewhere.
To access the translations, click on the globe logo at the upper right-hand corner of any page to reach the languages menu.
The English language resource was created or reviewed by a medical professional for quality and accuracy.
A qualified translation company performed an independent review by a second translator, and a client advocate.