Frequently Asked Questions
The Dorough Lupus Foundation is not an authority on this disease and makes no claim to be. You should always consult a physician about the symptoms you may be experiencing. This information should be used for educational purposes only.
>> What is lupus?
Lupus is a chronic autoimmune disease, which causes inflammation of various parts of the body, especially the skin, joints, blood and kidneys. The immune system normally protects the body against viruses, bacteria and other foreign materials.
In an autoimmune disease like lupus, the immune system loses its ability to tell the difference between foreign substances and it own cells and tissues. The immune system then makes anti-bodies directed against itself.
>> Is lupus contagious?
Lupus is NOT infectious, rare or cancerous.
>> Is lupus easy to diagnose?
No. Lupus can be very difficult to diagnose because it mimics other diseases and illnesses. Some symptoms of lupus can be transient joint and muscle pain, chronic fatigue, a rash caused or made by sunlight, low grade fevers, hair loss, pleurisy, appetite loss, sores in the nose or mouth or pain sensitivity of the fingers to the cold.
>> How many people have lupus?
A study by Bruskin/Goldring conducted in 1994 showed that about 1.4 to 2 million people have been diagnosed with lupus. It is estimated that more than 16 thousand Americans will develop lupus each year. Lupus is more prevalent than AIDS, Sickle Cell Anemia, Cerebral Palsy, Multiple Sclerosis and Cystic Fibrosis.
>> What causes lupus?
Although the specific cause of lupus is not known, scientists suspect that individuals are genetically predisposed to lupus, and know that environmental factors such as infections, antibodies, ultraviolet light, extreme stress and certain drugs play a critical role in triggering lupus.
>> Who is more likely to have lupus?
Lupus is often referred to as a “woman’s disease. Many men have the disease also. Lupus can occur at any age, however it occurs 10 to 15 times more frequently among adult females than male, usually during the child bearing years. Lupus is more prevalent in African Americans, Latinos, Native Americans and Asians. The reason for the ethnic selection is not clear.
>> If I do have lupus, what’s the prognosis?
The idea that lupus is generally a fatal disease is not consistent with the facts. In 1955, half the patients died within 4 years, and by 1969, half the patients died within 10 years of being diagnosed.
Today, more than 90 percent of all lupus patients live more than 10 years, although–if organ-threatening disease is present– only 60 percent survive 15 – 20 years. Most individuals can look forward to a normal lifespan.
>>How can I help or get involved?
You can help by sending a donations directly to our organization or by organizing independent fundraisers raising money to benefit the Dorough Lupus Foundation. For independent fund raising events you should contact state and local official to ensure that you are in compliance with all laws in your location.
It is in the best interest of your fundraiser that you contact us prior to advertisting the event. If we are aware of your event we can then verify it to anyone calling for more information.
|A Clinic Overview of Lupus||SLE HANDOUT-U.S. Dept. of Health||Alliance For Lupus Research (ALR)|
|Veritas Medicine||Lupus Alliance||The Lupus Site|
|Lupus at About.com||Lupus at iVillageHealth.com||My Lupus Story|
|Lupus Book Store||Lupus Foundation Of America (LFA)||MedicineNet.com|
|Mayo Health Clinic||The American Autoimmune Related
Diseases Association, Inc (AARDA)
|Pollyanna’s Official Site|
|The Nepcure Foundation||The Lara Study||Donna Jackson Nakaza’s Book|