Accommodation Ideas for Marfan Syndrome
Marfan syndrome is a genetic disorder of the connective tissue that can affect the skeleton, lungs, eyes, heart, and blood vessels. The condition affects both men and women of any race or ethnic group. It is estimated that at least 200,000 people in the United States have Marfan syndrome or a related connective tissue disorder.
Characteristics of the disorder vary greatly, but the most common problems associated with Marfan syndrome include heart problems, scoliosis, and near-sightedness. There is no cure for the disorder yet, but careful medical management can greatly improve the prognosis and lengthen the life span.
Accommodation ideas for individuals with Marfan syndrome:
- Fatigue: Fatigue is often associated with Marfan syndrome. Possible solutions include a reduced work schedule, periodic rest breaks, a transfer to a less physically demanding job, and the flexible use of leave time. Individuals may also benefit from implementing ergonomic principles. For additional information on ergonomics, visit: Ergonomics in the Workplace: A Resource Guide.
- Lifting Materials, Products, and People: Individuals with Marfan syndrome sometimes have difficulty lifting. Compact lifting devices, vacuum material handling, and winches are useful for moving materials and products. For transferring and moving people, patient lifts are helpful. For additional information on accommodations for lifting, visit SOAR's Accommodations for Individuals with Back Conditions.
- Dealing with Workplace Stress: Individuals with Marfan syndrome sometimes benefit from reduction or elimination of stress in the current position, transfer to a less stressful position, flexible schedule to recover from any effects caused by workplace stress, and work at home to avoid workplace stress.
- Low Vision: Some individuals Marfan syndrome have low vision. For information on accommodations for individuals with vision impairments, visit SOAR's Accommodations for Individuals with Vision Impairments.
- Heart-Related Impairments: Individuals Marfan syndrome may experience impairments of the heart, which can result in various limitations. For information on accommodations for individuals with heard conditions, visit SOAR's Accommodations for Individuals with Heart Conditions.