I recently found out that I have the ENG gene that causes HHT. I am very stressed out thinking that I have a 50% chance of passing this on to my children.
I know about the IVF + PGT option. But it is very expensive and in my country it is not that easy to access. Also, genetic counselors are not a thing here either. I have talked to the geneticist, but I don't feel like I have received all the information I need.
I have days when I say that I absolutely must avoid passing on this disease. And other days when I say that it is not that severe.
I would like to know how serious, dangerous, severe this disease actually is?